Ebook , by Julia Fox Garrison
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, by Julia Fox Garrison
Ebook , by Julia Fox Garrison
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Product details
File Size: 782 KB
Print Length: 354 pages
Publisher: HarperCollins e-books; Reprint edition (December 20, 2008)
Publication Date: October 6, 2009
Sold by: HarperCollins Publishers
Language: English
ASIN: B001O7ESDS
Text-to-Speech:
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Amazon Best Sellers Rank:
#594,476 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
I heard of this book from my GP a few years ago. He said he'd read the book's review in The Lancet.Because of my own eyesight and concentration difficulties after a cerebral event, I haven't been able to read it until now.I was so bowled over by Julia's story and the way she tells it with such determination to get well - and her wonderful sense of humour (and, boy! don't you need all the laughs you can get in this situation!), that I immediately contacted her to say what a great book, sheer genius!For me, having gone through this sort of thing, it's a triumph of literary description. When you consider how difficult it is to describe cognitive and physical deficiencies, Julia's done it so well. I so recognise a lot of what she went through and so will other patients.One of the most important issues is how to make your doctors LISTEN to the symptoms. Sad to say, mostly they are very poor at this. In this book, the author points this out very clearly. No wonder The Lancet thought it should be widely read by doctors and other healthcare staff.Julia also underlines the equally vital importance of treating patients as individuals, real people with their own thoughts, plans, ideas on how to recover. Often, especially with things like strokes, people are just lumped into a category that writes them off. Julia is a shining example of how to assert a) her own individuality within a very depersonalising system and b) that she is going to get much better than her doctors predicted at the outset. This is such a helpful beacon for others on similar journeys.The third thing that Julia insists we patients remember is 'trust your intuition about your own body - you know it infinitely better than doctors'. In a very surprising and very sad twist in the tale at the end, Julia's intuition all along is proved to be right.This is a great book for encouraging stroke and traumatic brain injury people to take charge of their own healthcare and recovery, and how to manage your doctors (whilst they think they're managing you!!).I'd have liked to read more about what happened after the shocking twist, but I understand why it isn't there. Julia gives some great template letters/info to hand to your own doctors; I'd like to see a 'Don't Leave Me This Way' workbook next!I also wish I'd been able to say those sort of things to my Drs Jerk, Clueless, Nospikka Da Inglish and Indifference. Julia shows that it's possible to be so assertively funny and not only survive, but thrive!This book should be the very first book you read - and have your family and friends read - after stroke or head injury!
If you or a loved one has had a stroke you will love this book. I hope that you have the good fortune of reading it prior to that dreaded event, if you have it, but if not it will still be a tremendous help as you struggle to rehabilitate yourself or help a loved one through that process.In my case, my first experience with stroke was when my next door neighbor had a serious stroke. I wish I had read Julia's book then, so that my wife and I could have helped him and his wife more than we have. Then a few years later one of our best friends had an even more debilitating stroke. In Intensive Care, he and his wife recommended that we read this book so we would understand what they were going through, and how we could best support them. My wife and I read Julia's book and started to use her experiences to better support our neighbor and our best friends. Then I had a stroke. Fortunately, with the timely injection of TPA, I survived with no mental or physical impairments. My neighbor and best friend and their families weren't so lucky.The real problem isn't the stroke itself. You either live or die. If you die, that's the end of the story. If you live, you have to face reality and this book will help you do that over the long recovery process which many times will not return you to where you were before the stroke. If one of your family members has a stroke, especially if you become the primary care giver, this book will help you care for your loved one in a compassionate way, but with the guidance and persistance your loved one needs to recover. If you are a close friend of a stroke survivor, it will help you relate to him or her as the same person you knew before, despite the effects of the stroke, so that you can become an important source of their support during their recovery process.So this is a great book for those dealing with stroke, either as the stroke survivor or the stroke survivor's family and friends. It's also a great book for healthcare providers of stroke patients, because it provides a patient's perspective on the positive and negative experiences she has faced with physicians she has trusted to help her. Some healthcare professionals have criticized her for criticizing them. I applaud Julia for telling it like it is, since I have had the same mixed review of the healthcare professionals who treated me during my stroke. Most were wonderful and helped save me; a few were terribly and cared more about themselves than saving me.
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December 30, 2016
Phiafield
